RESOURCES

Multimedia Presentations

What’s Out There? – A webinar presentation by Sophia Johansson (May 16, 2016). An overview of publicly available services and supports that exist for families of children with special health care needs, developmental disabilities, and/or chronic illnesses. Also available: Webinar TranscriptWebinar SlidesWebinar Handouts.

Reports, Directories & Links

Statewide Family Support Directory – Massachusetts Department of Developmental Disabilities; September 2015

Human Rights Resources for Families (April 2016)

The Role of Families & Guardians in Safeguarding Human Rights

MA21 – Implementing a 21st Century Disability Policy

Family Support and Self-Determination – Connections to a Life in the Community

My Individual Support Plan, a Guide for Self Advocates

What is Family Support?

The Utility of Trouble: Maximizing the Value of Our Human Services Dollars (Executive Summary) – Report by The Boston Foundation and the Massachusetts Taxpayers Foundation

Blueprint for Success: Employing Individuals with Intellectual Disabilities in Massachusetts – Given recent federal policy changes and directives, a mutual, proactive plan has been created by key representatives of the Association of Developmental Disabilities, The Arc Massachusetts, and the Massachusetts Department of Developmental Services to increase integrated employment opportunities for people with intellectual disabilities.

MassHealth Office of Long Term Services and Supports – Programs and Services Overview (May 2014) – PowerPoint Presentation by Kenneth J. Smith, Commonwealth of Massachusetts Executive Office of Health and Human Services.

Transition from School to Adult Department of Mental Retardation Services Focus Groups: Themes and Recommendations– Massachusetts Department of Developmental Services, Governor’s Commission on Mental Retardation Report of July, 2007.

Books

Check out some great books for anyone interested in person-centered planning, systems change, and more.

View Books

Links

View a list of links to resources and websites with useful information on supports and services for families in Massachusetts.

Go to Links

Articles & Inspiration

The Natural Authority of the Family Voice:

Circling Back – by Jocelyn Duff, Northeast Region Family Leadership Series participant and Executive Director of the The Talia Duff Foundation To Cure CMT4J

The Day I Realized That My Special Needs Child Deserves to Live an Enviable Life – by Nicole Feeney (Advocacy Boot Camp & Southeast Region Family Leadership Series Participant)

Brian Kovalski, Parent – by Brian Kovalski (Central Region Family Leadership Series participant)

Enviable Life – Imagine Better – by Chris Peltier (West Region Family Leadership Series graduate, former MFOFC Board Member)

Parent Job Description – by Ingrid Flory (West Regional Coordinator for MFOFC)

The Natural Authority of Families – by Michael Kendrick

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